Author Topic: need your opinions on celiac's  (Read 584 times)

Offline starmissy

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need your opinions on celiac's
« on: June 29, 2010, 08:06:48 AM »
hi new here so desperate thought id try here instead of paying for it.
thinking i may have celiac's or something along that line suffering since feb 10 had ultrasounds xrays nothing showed first they thought was kidneys then hernia etc.ive not had any bloods done yet and i have a urologist appointment thurs but think i need gastro.
take deep breathe my symptoms have been building up wasnt til i met someone with celiacs that they told me to get tested for it.
abdominal pain lower/upper constant but worse depending on certain food/drink
all over stomach pain, sometimes my insides feel on fire.
back pain low /middle
constipation
rare diarrea
some floating stools
mild gas/indigestion
very bad headaches/eye pain
tinging hands/feet sometimes burning
side pain by colon
nausea alot
restless sleep or no sleep
pricking sensation on tummy
sensation of hand stroking inside tummy
pain in thighs,ankles,knees,neck.
funny throats like dry or somtimes there.
irritable all time
some bloating
swollen tummy
tiredness
gained 2 stone in 4 months but dont eat that much to gain that much.
tummy spasms on/off

not pregnant this started after a bad kidney infection that lasted 12 weeks in hospital on/off
had xrays ultrasounds...no blood tests.
im prone to infections and i suffer glue ear and eczema.
my dad has epilepsy and my sister has IBS we also have diabetes in family but ive been tested for it before. im 25 and running out of ideas been keeping diary of food/drinks incase but a cheapy home celiac test i got online from selling site for a couple of quid showed negative should i mention this all to the doctor as since feb my symptoms have appeared on different levels always started with abdominal and back pain though rest built up over months affter infection.

Offline the sensible celiac

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Re: need your opinions on celiac's
« Reply #1 on: June 29, 2010, 08:58:42 AM »
Hi Starmissy.  I'm not a doctor, I can't diagnose anything.  Based on the symptoms you describe it seems like a real possibility that you might have celiac disease, I think you should pursue a diagnosis, or ruling it out, with your doctors.

You mentioned that there are family members with diabetes, if this is type 1 diabetes, a/k/a juvenile onset diabetes, that is an autoimmune disorder as is celiac disease and people with one  autoimmune disorder are at increased risk of developing other autoimmune disorders.  It also suggests the genetic presence of susceptibility to celiac disease in your family.

You mentioned that your sister has been diagnosed with IBS, this is a catch all diagnosis used when doctors do not know the real cause of persistent intestinal problems.  It often happens that people who have been diagnosed as suffering from IBS are later discovered to have celiac disease.

When one person in a family is diagnosed with celiac disease the probability that other family members may receive the same diagnosis goes up enormously as compared to random members of the public.

Very much of what you say does sound like celiac disease to me, but please do get a medical professional to give you the final word. 

Offline starmissy

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Re: need your opinions on celiac's
« Reply #2 on: June 29, 2010, 01:11:26 PM »
yes im going straight to the doctor when she gets back somthing is deff going on and needs sorting.
yes my uncle has type 1.

alot of family has one or had one condition we have in family
diabetes
epilespy
IBS
heart diease and heart problems
kidney cancer
cancer of ovrians
cholestol problems high

i seem to be prone to infections that are hard to get rid of.have had low blood pressure,low possatism ever time i go in hospital granteed i get hook up to one.they always say im dehyrated but i drink enough.
concerned they may miss it on bloods as another thing i noticed in my time is things go unmissed first time ...i had a cyst on one tube they missed it on ultra sound found it on random surgery.
when i had the kidney infection 1st hospital trip showed my white cells where fine second visit less than a week later showed sky high white cells...will update on here when i get answers thanks for help