spam

Author Topic: I have celiac just trying to get it confirmed ...also candida problems???  (Read 1262 times)

Offline moseleymand

  • Jr. Member
  • **
  • Posts: 3
  • Karma: 0
Hello My names Mandy ..

Nice to chat to you all having the same experiences really helps....I am not bonkers like I was starting to think lol...

Okay 14 months ago I  had loads of antibiotics then a minor op more antibitics - then returned to work after having a few days off - I was having sexual harrassment problems reported it and funny enough got made redundant shortly after..within a few days of coming out of hospital I noticed my belly was bloated and a fuzzy feeling...

went to docs he said IBS and I happlily went away thinking yeah I am stressed made sense...although Ive suffered IBS before..

He said eat loads of fruit and veg I did and started getting really constipated..went on a few days to the point I was in agony and my tum was distended..rushed to er and I had impacted feaces..gave me laxatives sent me home to eat more fruit...impacted again..
sent nurses out to do enmas didnt work just ended up in pain..

Symptoms at this stage:
Thick rash top of bottom
left eye itchy, eye gunk, felt weird
thrush
distention
chronic fatigue
anxiety
major depression
constipation
pain intum
seizure
low self esteem
tieredfood in stools
mucus in stools
Back to doctors..they gave me tabs for ulcer didnt work..then got reffered to gastro..

whilst waiting it was xmas I was so ill and so swollen by this time and felt like I couldnt move with fatigue..my friend said come on come for a drink ..had a few baracrdis and stayed at hers got up in the night collapsed in her bathroom and had a massive seizure cracked my head and nose on the toilet and was pouring with blood..horrible hospital said well you seem okay now must of been a one off!!!

Things just got worse and worse had endoscopy they found Hiatus hernia..had the other one up your bottom (excuse me) and they confirmed IBS and also inflamtion..

I was dismissed with IBS from stress..I was still really ill and knew something was wrong..

I got a call from the compalints at hospital lady said this is off the record sounds like you have systematic candida you need to see a homeopath so I did...she said I had chronic canidda throught out my body..along with leaky gut and I was delpeated of vit and minerals..

I spoke to gastro and said why cant you help with candida she said" you can only get systematic candida if you have an autoimmune disease" ...so why didnt she bloody check to see if I have!!!!!

She put me on a diet no sugar, no fruit, yeast, moulds..when she tested she said I was also allergic to wheat, msg, sweetners and loads of other stuff due to leaky gut..

Started the diet felt a little better apart from now and again I would have ryvita as she said I could and it would upset my tum I kept telling her she said your just senstive..

never really felt great but 50% better than I was ..I cut out the ryvita but got so bored with rice cakes once a week I would add them to my diet for a change..

got to the end 7 months..of eating rice, veg,tuna, chicken and probotics and antifungals..

She said right you can introduce foods now but you will never be able to eat wheat..

I started having porrige, sugar, yeast, all sorts apart from bread and started feeling worse again..she said you have an underlying problem as your candida should be gone....

I got so down in the next month as I was so focused on getting better wityh her and I didnt I started night eating

Getting up 3am looking for anythi8ng I shouldnt be eating...    I was so ill when I would get up

Canker sores in my mouth, massive distention tummy, depression, rashes, big bulky frothy stools with bits of food, loads of spots....

Felt like giving up at this point 1 month ago..then my sister said what about celiac I said I think Ive been tested..but I'll try the diet...wow..in a few days felt happier..then went on a work leaving do and within an hour of eating (was supposed to be gluten free but I am new to it may be it was contaminated)  I was down, anxious..belly started gurgling..few hours later my tum was massive..achey..in the morning my mouth was full of sores and felt really sick..

Got back on diet..felt better happy again then had an asprin/paracetamol with cafine and started shaking, anxious, tum swelling etc....

Its as if each time I get back on diet whenI make a mistake the symptoms are worse..

So, went to doctors told him about celiac diet making me feel better he said but its was nagative...he opulled out my notes and said Amanda I havent tested u for it and nor did the hospital at the begining get straight down the blood test tomorrow and get one done..

The problem is I had started the diet already and whist seeing homeopath was really only eating rice and now and again a ryvita..

I should get results tomorrow but I dont think it will show up and then I am going to have to go back to eating the blimming stuff for 6 weeks to get my result!!!!!!!!!! really dont want to...

Also my thrush has com back went to womens clinic and they said I have no thrush it was all healthy but they have put me on an antifungal just in case!!! 

Has anyone suffered from candidas or being itchy will this go with celiac??
My tum isnt as swollen how long will it take to go down with CF diet?

Sorry its such a long story but I just wanted to tell it from the begining ...xxx

 :roll: Mad Mand..well feel like I am going mad..ha ha ha       
     

Offline the sensible celiac

  • Administrator
  • Hero Member
  • *****
  • Posts: 578
  • Karma: 16
    • Skeptic Hosting
Re: I have celiac just trying to get it confirmed ...also candida problems???
« Reply #1 on: February 08, 2007, 02:28:48 PM »
Hello My names Mandy ..
...

Has anyone suffered from candidas or being itchy will this go with celiac??
My tum isnt as swollen how long will it take to go down with CF diet?

Sorry its such a long story but I just wanted to tell it from the begining ...xxx

 :roll: Mad Mand..well feel like I am going mad..ha ha ha       
     


Hi Mandy,

You certainly have had it rough.

As far as the itching goes, you should look at some photos of people with Dermatitis Herpetiformis.  Try this Google Image Search.  A certain percentage of people with celiac disease also have this rash.   Presence of Dermatitis Herpetiformis is sometimes considered a factor in diagnosing celiac disease.

The blood tests for celiac disease are very likely to give a false negative if you do have celiac disease but you are eating a GF diet.  Discuss this with your doctor.

Keep us posted too.

Steve

 

glutenbearing