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Author Topic: New to celiac  (Read 1235 times)

Offline Marie

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New to celiac
« on: December 31, 2006, 08:27:15 AM »
I have been recently diagnosed with celiac disease.  I have been trying to research it as much as I can.  I have found this site very helpful.  My problem is that I haven't started feeling any better.  It started with diarrhea, cracked fingers, and some upper respiratory issues in May 2006.  In August my women's doctor was concerned with my weight loss and had me go in for more tests.  I was then sent to a stomach specialist and that is where I was found to have celiac disease. (Oct. 2006)  My hands are still dry and crack, and I still haven't solved the diarrhea.  My doctor talks about other patients that he has diagnosed and they got better.   I just don't know how long it should take for my system to get back to "normal".  I get really concerned aobut what nutrients my body is absorbing.  I am still losing weight and my doctor is trying several medications: one at a time.  Does it take a while following a gluten-free diet to see a change? 

Marie 

Offline the sensible celiac

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Re: New to celiac
« Reply #1 on: December 31, 2006, 08:49:09 AM »
Hi Marie, and welcome.

It often does take a while for a person newly gluten-free to start feeling better. Some other people notice a difference almost immediately, but this seems less common than taking a while.

If you are eating GF and still feeling intestinal distress it may be that other things in your diet besides gluten are not doing well right now for you. I suggest you try to avoid dairy products for a day or two, many people who go gluten free develop a subsequent lactose intolerance problem - often this is only temporary.  If after a day or two you do feel better consider going dairy free for at least a month or two.

To get your gut under control you might want to steer toward foods known as less often involved in allergies.  Rice is well tolerated for most people.  I tell people that rice is my friend, and it is, a bowl of plain white rice

Celiac disease is not an allergy in the usual sense, since it involves damage done to the gut by the body reacting unwisely to a perceived threat (the protein fragments in gluten), but people with celiac disease sometimes have ordinary food allergies too.

Many people note they are feeling better in just a few weeks, some take 2 months, and a few struggle even on a gf diet.

I'm getting by OK on a diet that is vegan as well as gluten free. The two restrictions do provide some challenges, especially when traveling, but at home a high percentage of my meals are made from scratch. This ends up meaning they are just the way I want them in terms of seasoning and ingredients.  I've become a better cook since my diagnosis because I use basic ingredients more often, and this helps the finished product be better.

Please keep us posted, and ask any other questions you may have.

Steve

Offline lizgreehy

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Re: New to celiac
« Reply #2 on: February 03, 2007, 01:48:44 AM »
HI I just thought id mention that many people have experienced that things can get worse before they get better with celiac disease... but it is also possible that gluten still slipping into your diet perhaps... cross contamination is very easy... a crumb of the offending food can cause a whole range of chain reactions in the gut. We have seen it with our son... he has to have a separate toaster, his own work surface etc... also.. the enzyme that breaks down diary is produced in the small intestine and when this is damaged as a result of celiac disease, then it isnt functioning properly and diary products can subsequently cause much discomfort and gastro issues... I would reccommend going off dairy products for a few months or as long as it takes and you might start seeing results. ALso, the damage in the small intestine can cause other problems too... or so we have learned... problems with other foods such as soy, corn, eggs - so try figuring out do any of these things cause you problems. Try eliminating the dairy first and see how you go.

 

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